Ever since my 2nd procedure last July I have a achy pain and hardness in my neck where I think my left jugular is and my symptoms have gotten worse. I wonder how blocked it is now.. it was 80% in July and 70% at my 1st procedure. Wouldn’t doubt it is 90% now.
I do have a great primary care doctor who watches Dr. Diana’s video’s and has read part 1 and 2 of the Driscol theory – yeah! He is trying to figure out the next steps he wants to take with me based on this new information. One of the things he is wondering is about cutting open the sheath to get the pressure off the vagus nerve. It would seem to me that if the pressure was removed then the mast cell/cytocines/TNF and all the autonomic stuff should clear up, if it is caused by the vagus nerve compression. Am I reading this wrong or missing something?
Ourfullhouse, we need to talk more often!! First, WHO and WHERE is your PCP?!! I WANT him/her!! I, too, have had aching at my treated vein, especially on the right side. If you’ve seen my CCSVI talks, etc. you know that I think we are setting ourselves up for restenosis if we do not have our inflammation under control (I certainly did NOT when I went for angioplasty!). Ironically, if our IJV has a bad valve and becomes very large (and has slightly increased pressure), that is more pressure on the vagus, which then increases inflammation. Heck. I am also considering a neurosurgeon to see if he/she could possibly release the vagus and IJV from the carotid sheath. Is that possible? Would that be enough? I am also considering vagus nerve stimulation (or other forms of decompression). I like the idea of external stimulation and have just started looking into that (can we do a clinical trial if it will only be available in Germany starting toward the end of this year? Obviously, if we can go with something that does not involve a knife, I want to try it! And I agree with you. If we can decompress the vagus, and maybe give our immune system a little PUSH with anti-inflammatory cytokine meds and mast cell meds, homeostasis may result. HOW GREAT WOULD THAT BE? YES, you are thinking along the exact same lines I am. Great minds, huh? 🙂 Diana