I haven’t hear of hardly anyone that has OI and not POTS. Other then Greg Page from the wiggles :)Thank you !
Hon, I am leaning toward your OI possibly being your first symptom of POTS (or perhaps your most prevalent). With myself, I noticed gastroparesis first, then OI. It was years before I began to notice the other symptoms and signs. Unfortunately, as time goes by, and without proper treatment, we can go down a spectrum of conditions over time. I will do everything I can to keep you from progressing, OK? That is what my research is for. A huge “thank you” to Palomino — yes, please start reading through The Driscoll Theory, Parts 1 and 2. Let’s get a jump on your symptoms and stop them dead in their tracks. OK? Big hug, Diana