NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Gastroparesis? Slow gastric emptying? Constipation? › Reply To: Gastroparesis? Slow gastric emptying? Constipation?
Hi Dr. Diana,
I have been dealing with this issue for over two years. First they said “Fibromyalgia”, second “IBS”, then “BFS”, “Meniere’s Disease”, the list goes on and on. After going through several neurologists, rheumatologists, My cardiologist now along with new Rheumy say “EDS”. I think they have known this all along and never said anything to me. I was born premature at 3 lbs. 6oz., had a heart murmur (went on to have two open heart surgeries one at 18, the other at 22)now they call if Tetrology of Falot. They had to redo surgery because the PDA and VSD and ASD all reopened. The ASD had to be replaced because it calcified. Dr. Denton Cooley did both surgeries in Texas. He told me that I would be luck to live past 48 or so because of my genetic condition…we always thought that meant my heart defect..He also wasn’t sure how I would heal. My scar is wide and thin. I was always told I was double jointed..could do the chinese split and put my head in my palms at the same time. Knocked knees, very veiny, stretchy skin, varicose veins at 15, bad stretch marks even though I weigh only 110 and at 9 months pregnant I was 122. I Can do all the tricks with the hands got a 7 out of 9 and Rheumy said the other 2 points maybe added because my knees sublux and do go back a bit. I had nose bleeds so bad it was like a period for awhile. Now my rheumy says I do not need to have a genetic blood test, because even if it is vascular they will treat me the same (have an echo every 6 months). My stomach issues have really bothered me and after going thru two gastrointerologists, I know have one who says I have GERD, Severe Gastritis and IBS. They checked my liver, gallbladder, kidney (I was born with only 1), lungs (say I have early emphasetamous changes – I have never smoked…I am on: Coumadin,Tramadol 200mg 1x, 400 Magnisium 3x, Evoxac (dry eye, mouth),Tizanidine 4mg 1x,zoloft 100mg 1x,pantoprazole 40mg 3x,Amitiza 2x (try not to take – it makes me feel like I am having a heart attack). I barely go potty. I tried once eating corn and 4 days later it showed up…My stomach hurts so bad right now on the right side below ribcage, sometimes it hurts so bad it wakes me up. Please if there is anything you know to help… Thanks in advance! Shelley