Hi ourfullhouse and Givemydaughtertheshot,
Can we be gross? ABSOLUTELY!! I’ve been through it all. The lecture and press interview from ISNVD that is on my site? I had to wear a compression garment to suck in the distention. Ugh. a couple of days before that, I was on the potty about every 10 minutes. I asked a friend, “Am I supposed to wear a diaper to give this talk?” Jeez. OK, diarrhea first: are you or your kids who are affected on mast cell meds? What a help that was! Cromolyn, too? That’s important. There is another drug that took care of it for me, but it is by prescription, and I’ll need to set up a clinical trial for that one. Collecting names! 🙂 This one changed my life, really. It’s inexpensive and has almost no risks. It is (not unlike diamox) one of the “forgotten meds”. So sad, because OMG does it work well. Constipation: For the kiddo’s: What are their ages? I see no contraindications for them, but will need to adjust their dose down a bit (depending on their weight and age). As a child, I had some horrible constipation, and was quite familiar with my mom’s enemas. yikes. This medication is just replacing what our bodies are not making enough of, basically. And Oh, what a relief it is! (remember that commercial?). Let me know! Just shoot me an email, agree to confidentiality, and I’ll talk you through it. If you or your kids do as well as I did on it, I’ll start to work on a clinical trial (which takes forever and a day, BTW). Hugs, Diana