I don’t have any MRI yet and probably will not for a while. I have very expensive yet sub-standard insurance that will probably deny me. I’m waiting for a referral to a neurologist and have been waiting for months and months.
As far as symptoms go I don’t have headaches like some people do nor do I believe I have any liquid draining from my spine out my nose. What I do have is all of the POTS symptoms and a very painful neck with radiating pain. I also have endocrine disturbances which according to the book could be pressure on the pituitary sella. Since I was a child If I put my head down I get a swaying sensation and feel like multiple limbs are moving.
I know I get terrible altitude sickness (which would support the theory I suppose). I have GI issues, sensitivities to wheat, gluten, night shades, milk, nuts, and seeds.