Hi Barbara. Thanks for replying.
The purpose of the CT Angio stemmed from a vascular spasm that was noted in my right subclavian artery during ultrasound testing. So the focus was on my shoulder. They found a kink in the subclavian artery and possibly some pressure on it from an extra cervical rib. I did an injection but it was timed for the shoulder.
I am actually not sure if these images are CT or MRI-I didn’t label it when I transferred it to my iPad. I thought it was the CT Angio, but it could be my MRI – I don’t know how to tell the difference.
My prominent veins are more so than before as well. The vascular team dealing with the kinked artery referred me to a specialist because they felt I have systemic vasculitis. Still waiting for that appointment a year later as well as an appointment re-dermatomyositis diagnosis. I am positive too that I have erythromelalgia in my hands and feet. It is getting worse and keeps me up at night. the erythromelalgia is activated/coincides with the prominent veins. They are related.
In addition to the kinked artery, I have many visibly tortuous veins. I am convinced that I have vascular EDS, my geneticist has me diagnosed with classical, but also said that we can’t rule out vascular 100%. She said she would reconsider the vascular EDS diagnosis if I had any tortuosity’s in the CT Angio, which I did. I have not met with her yet though.
Does your blood pressure go up with your pots? Mine does and I feel this has something to do with the prominent veins.
Start with vasculitis for the prominent veins. If I get diagnosed with anything I will be sure to let you know.
Thanks Barbara