Been waiting since December 9, 2014 for that referral. I followed up three times within the first six months and then got really frustrated and now it is been well over year. Dermatomyositis and systemic vasculitis are definitely two things that should be diagnosed quickly-I am not impressed.
Thank you for the push Barbara- I will follow up AGAIN. I wish you all the best Barbara-I know you have a lot going on. Have you tried craniosacral therapy? I dramatically improved. I would say I feel 70% better since receiving craniosacral therapy on a weekly basis. This is proof to me that I have intercranial pressure issues. I also have some weird sinus issues related to the intracranial pressure. And this could be related to the type of systemic vasculitis that I may have. I know it sounds crazy, but if I push on one of my swollen sinuses my neck pain (back of neck) and the pressure in my head subside and my shallow breathing returns to normal deep breaths.
MJ