NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › If Diamox doesn't help could it be a spinal fluid leak? › Reply To: If Diamox doesn't help could it be a spinal fluid leak?
I understand how frustrating it is—many of us can be intensely ill and can’t believe our doctors are not treating us as an urgent problem, right?! You are not alone in that feeling, certainly. If your leak is through your nose, a beta-2-transferrin test is possible (but very difficult because of the amount of fluid needed). If it is a spinal leak, imaging tests are necessary. A good site for information on spinal leaks is http://spinalcsfleak.org/ We see patients with high and low intracranial pressure at POTS Care and do our best to figure it out non-invasively. If it is appears to be a spinal leak, doctors experienced in leaks must test and repair. It is worth seeking out the experts! On the site mentioned above, you’ll see some of the experts in this field chime in. Worth a look?