Hi Echo, You’ll be happy to know that *most* ocular side effects of EDS do not cause the pain you describe. Any good eye doctor will know what to do when you say “my eye hurts”. 😉 It shouldn’t be up to the patient to figure out what tests are needed (can you imagine? We’d all need a medical license…). Likely, something is going on that can be diagnosed and treated, even without any real knowledge of EDS. It’s interesting that you say they don’t know anything about EDS? I know in optometry school, we discussed some of the ocular findings often found in connective tissue disorders (EDS, Marfans, etc). Perhaps they will remember “connective tissue disorders” better than “EDS”? I don’t know. As I mentioned in my book “EDS and Your Eyes”, it is important to NOT assume your ocular symptoms are due to EDS and are therefore unactionable. I betcha’ they’ll see what is happening and will treat you appropriately. Will you let us know how it goes? 😉