Hi Thanks for responding to my post 🙂 I am in a small town in southern Saskatchewan, Canada…Very far from Texas!! My optometrist didn’t mention where specifically the bleed is. I guess my biggest concern with my headaches is that they haven’t figured them out yet; it feels like I have a lot of pressure in my head. I can’t bend over to pick anything up. I guess my concern is, could pressure in the brain cause a bleed on the eye? or EDS related? I have had an MRI and a CT to check for an aneurysm and they tell me those are fine but I am not convinced they are looking for anything other than the aneurysm so it might not be fine and I think I need a lumbar to test pressure in the brain but my Dr. here won’t/can’t do it which means I need to go about two hrs. away. The only blessing right now is my cardiologist understands EDS and dysautanomia (sp?) issues. I just need to be patient. I will have to go onto another computer to look at the check list, my laptop can’t open it. I will post on that as soon as I can.
Hi myainsel, You likely know how important I think it is that we get our RAW DATA, right? 😉 I’d highly recommend getting a copy of your eye exam, including any photos, and Heavens, go ahead and ask them where the bleed is! I think it is important that you know. Have you ever had an MRV? If you are not draining venous blood properly, depending upon the location of the blockage, yes, it could cause bleeding. An MRV should tell you. You have described that pressure feeling for a while now. Has anyone tried to reduce your pressure with Diamox? Lumbar punctures are NOT a good idea for us, because we often don’t heal well, and I’ve seen patients with leaks that continued for MONTHS, or that reopened even years later, which can be a disaster, frankly. I know you are far away (although I had two patients from Canada for our clinical treatment trial!). I wish I could get you here! Are you in the southern portion — any where near the U.S.? Perhaps I can find someone to help you. (But please bear with me, as I am INUNDATED right now!). Yes! The checklist will help, if you haven’t already sent it! 😉