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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What first?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What first? › Reply To: What first?

October 22, 2013 at 5:05 am #4536
grumpy
Participant

Hi
I have been told all my life that my posture is to blame, “sit up and get your head over our shoulders” I wonder what it feels like to naturally have good posture?
Collar looks like a sensible thing to try, would it be worth trying just at night? It’s a big step to wear one outside during the day (and even in front of my kids) ; it will show the whole world that I am actually ill and I will have to explain it over and over again to all those people who currently think I am well. Will talk to my GP about it.

Will definitely try to get soft copies of everything from now on.

Sitting in a coffee shop trying to turn the Symptom check sheet into a list of my symptoms for the GP appt tomorrow.

Graham

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