NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Hot Hands › Reply To: Hot Hands
I have problems regulating my body temperature too. It seems I have a very narrow range of temperatures I am comfortable in. Too much either way and I am miserable. I think the heat is the worst though because the heat makes my heart rate go wild. At least in the cold I can put warmer clothes on…until I get too hot, lol.
It is funny you mention the tip of your nose, my husband teases me about it all the time too. Mostly the tip of my nose gets cold and he keeps telling me he is going to make me a “nose jacket”.
My hands get so hot that when I touch someone, it is uncomfortable for them. Most times I don’t know my hands are hot unless I put them together. I have noticed along the way that when I am feeling really bad, my hands are like this.
I think people mostly mention how cold my hand are more than hot. I don’t know if this is an EDS thing or just something my kids and I do, but when our feet get hot they sweat so much it leaves foot prints on the floor. When I was working I had shoes that I could only use during the winter because my feet got so cold or only during the summer because they got so hot. When I was a kid we lived in Michigan and remember if I was outside my toes would get so cold, very quickly, and it hurt bad. It was hard to get them to warm back up. Same with my fingers. As I age it only gets worse. I have trouble now holding hot or cold drinks without pain. Like you I dress in layers to pull them of and on as needed. Most of the time my body is burning up, but my feet are ice cold. So I sit with a blanket just on them. To remove and recover as need.
Maybe your husband could invent a designer nose jacket. It might be a hit among us “zebras”. Then y’all can retire early. Nose can get s cold it hurts too.