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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What first?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What first? › Reply To: What first?

October 17, 2013 at 9:17 am #4519
Barbara
Participant

Hi Graham,
Wow, love the pictures! The Lambretta takes me back to the late 60’s, when I was a teenage Mod.

I know what you mean regarding where to go first, my accident (which triggered all of this) was in 2002 but I’m still seeking effective treatments, for some of the more troubling symptoms. I managed to track down various experts through the years as the symptoms progressed but none seemed to cover the full condition, merely ‘aspects’ of it. In fact, it’s only recently (in the last couple of years) that I’ve really started to understand the whole picture and Dr Diana’s YouTube videos provided several of the missing links.

I think it’s a case of prioritising. Some of the things you personally can address, starting now, other things need an expert’s investigation to diagnose for certain (and we all know this take months in the UK) so that needs instigating as soon as possible, there’s a certain element that’s still in it’s ‘new science’ stage, so you may need to experiment a little. We may all have similar symptoms but, we are all different and have reached this condition we are at now via different journeys, if you follow my meaning, so what may be beneficial for one may not be beneficial for all.

I am a little short of time at the moment, so I will ask you to read the following post for now, where I have tried to summarise the things that have been found to bring positive results. Later, I will explain in more detail, the aspects I have mentioned above.

http://prettyill.com/forums/viewthread/712/#3540

I wish you ‘All the Best’.
Regards
Barbara
(UK)

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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