Yes, Graham, a trial with Diamox is certainly in order! One potential problem, though, is that you can develop intracranial hypertension without swelling of the nerve head (“sine papilledema”). You will likely still respond well to Diamox. When I can publish the results of the treatment trial we are doing now, I hope to be able to explain it so even the smartest doctor can understand (and yes, I’m sort of hinting at some of the doctor egos we run into…) ; Please don’t let them do a lumbar puncture on you, though! We don’t tend to heal well and many of these folks develop chronic leaks after a lumbar puncture. That is MIS-ER-A-BLE. Diamox can be diagnostic all by itself! An MRI is needed to rule out other causes of increased pressure (such as “space occupying lesions”). Fingers crossed for you! 😉