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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What first?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What first? › Reply To: What first?

October 18, 2013 at 3:18 pm #4530
Dr. Diana
Keymaster

Yes, Graham, a trial with Diamox is certainly in order! One potential problem, though, is that you can develop intracranial hypertension without swelling of the nerve head (“sine papilledema”). You will likely still respond well to Diamox. When I can publish the results of the treatment trial we are doing now, I hope to be able to explain it so even the smartest doctor can understand (and yes, I’m sort of hinting at some of the doctor egos we run into…) ; Please don’t let them do a lumbar puncture on you, though! We don’t tend to heal well and many of these folks develop chronic leaks after a lumbar puncture. That is MIS-ER-A-BLE. Diamox can be diagnostic all by itself! An MRI is needed to rule out other causes of increased pressure (such as “space occupying lesions”). Fingers crossed for you! 😉

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