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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What first?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What first? › Reply To: What first?

October 22, 2013 at 5:10 am #4537
grumpy
Participant

Sounds like a plan, Graham! Diamox is only a mild diuretic, but GREAT if they’ll go for it! I’m almost ready to begin writing to get this in peer-reviewed journals (it can be torture — editors usually like NUMEROUS rewrites, if they accept it at all. Wish me luck!). Once it’s in journals, you shouldn’t have this battle any more… No worries on the art contest — I think it needs to be a “regular” — maybe every 6 months, don’t you? Big hug…

Good luck indeed. There’s lots of EDSers out there who need help and doctors aren’t helping at all yet.
6 monthly art contest would be cool, probably have about 100 years worth of entries ready to go though…;)

Been ill is so boring and hard, why does getting help have to be such a battle just when you aren’t up to battling?
Graham

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