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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: What first?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What first? › Reply To: What first?

October 21, 2013 at 3:18 am #4532
grumpy
Participant

Thank you.
I have a rough plan…GP appointment booked for Wednesday. I need a “water tablet” as I am currently doing very little wee during day and loads overnight (would you believe 1.5L – eds sized bladder – half way through the night and often fainting during self Cath as it takes so long), so will suggest that Diamox may well do both jobs as a test for both problems.

GP has referred me to Prof Mathias so will write to him with full list of symptoms and links to your pages before the appointment. He has been very helpful with my daughter and we have exchanged emails so may well be able to get some long distance advice before seeing him.

I had my eyes tested last week and will try opticians again this morning to see if they can do Fundus photo (don’t Fundus make frozen food?) and if they don’t do it then I will pay for test with the optician Barbara mentioned.

Have been extremely fed up over the weekend because as I now suspect CSF problems may be the cause of the trouble I have had for years but I also know it will be a huge mountain to climb to get anyone to really run with it. I also had to admit to my father in law that I am really just too ill to do enough work to support my family, we have managed to hide it from him by living off my redundancy money but it has all but run out now and the trouble is that it brought it home to me too.

Thanks for being understanding voices. Wish I’d found you years ago and especially wish I’d found you before the closing date for the art competition….

xx

Graham

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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