Is an MRV an MRI with dye? if it is, no I have not. My CT had dye though, not that that helps. It is very difficult to get an MRI in Canada. A specialist has to requisition it and they don’t like to do it because it cost the government money. Its very hard to get in to see a specialist. I can probably get one done privately. I will look into that tomorrow, I see my GP. I understand about toperimate and florinef are cancelling each other out. The way the cardiologist explained it to me is I am not getting enough blood carrying O2 to my brain. when I was is the hospital the only way they could stop my headaches was to put me on O2. I do notice a difference on florinef, I feel like I actually get air when I breath. My head felt clearer and have started to have memory return. But about 2 week into taking it my headaches started getting out of control again. I spoke to my cardiologist today and he told me to stop taking florinef for a few days to see if it helps my headaches. What medications are recommended to treat POTS/dysautonomia symptoms? if any?? I will also talk to my GP about Diamox. Thanks for taking the time to reply! If I could come to Texas I would! I may take you up on a referral to someone a little closer to the boarder though. 🙂 I was thinking about my headaches, they are over that left eye, and that left eye is the one that droops and that side of my face goes numb. I’m starting to wonder if there is something to this bleed!!
Yes, we usually like to order it with and without contrast (it is a different dye from a CT, though. Fluorinef is one of the drugs that doctors use to treat POTS “traditionally”. I’m not traditional, though! It DOES help if you have venous insufficiency, causing blood pooling (most of us do), and it helps if you have low blood volume (many of us do). BUT, it increases intracranial pressure, too, which is lousy. 🙁 Now, if your pulse ox is low, or if you are not getting enough oxygenated blood to your brain, oxygen and/or more fluid absolutely helps. It sounds like your headache was either a migraine (vessels in the brain become large very fast) or it was from high intracranial pressure. The oxygen causes the arteries/arterioles in the brain to become narrower (they don’t have to dilate in attempt to get oxygen to your brain any more). When they become narrower, the volume in your skull lowers, and the pressure declines (as does the pressure headache). I WISH I knew someone to refer to you! I would go there! ha. You may want to watch my video about how to find a doctor. I hope to shake up tradition a bit, because I *really* don’t believe that symptomatic treatment is the best way to go. I’m working on hitting the cause of the symptoms. 😉