NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › What first? › Reply To: What first?
I totally understand your frustration, my friend! We can easily dump all of our savings into doctors and ineffective treatments (been there, got the T-shirt)! I’m pedaling as fast as I can, OK? Don’t give up! Not when we’re so close to getting much needed treatments, OK? 😉 And the collar? I still wear a soft collar at night time — I’m not certain if I ‘need’ it, but it does give me comfort — like an old teddy bear. 😉 After reducing my head pressure, I no longer needed my hard collar, though (after 2 years of use!). We often complain that our illness is invisible. When you get up the guts to wear the collar in public, it’s amazing how many people want to offer empathy! We are definitely a visual society. So, perhaps it can work in your favor? 😉