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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Parkinsonism

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Parkinsonism › Reply To: Parkinsonism

May 29, 2014 at 7:56 am #5016
Deb
Participant

I have had headaches more this week. I woke up this morning with a bad headache and just realized why after I twisted and my whole back lined up. I had not been able to workout for a while and started working out again this week. I’m using weights and my body is adjusting. That is likely why the muscles keep pulling my back out. I twist and put them back it and they get out again sometimes within hours. I try to adjust it as little as possible but with the hypermobility they slip out easily and if I leave it out, it is very uncomfortable and I will get a headache.
I used to adjust my neck too but then found out I have CCI. Surgery is not an option though I have 2 neurosurgeons that want to do it. My whole spine is hypermobile so locking down some in the neck would just make the others worse. And really it doesn’t give me enough trouble to have surgery. I know the symptoms when it is out (all the normal ones of shooting pains in the arms and hands, headache, sensitivity near the spine) and they are completely gone when it is back in.
My main symptoms that worry me are not coming from my spine. They are definitely coming from the brain. The odd part is that this morning I woke up, stood up and my legs did not try to drop me. I am doing better today and I have the worst pressure headache from my back being out last night. So that makes me wonder now if the pressure might not help with the PD symptoms. PD is a problem with synaptic communication. Could pressure help that?
It is interesting too that yesterday I got a lot going. My mind was in high gear despite the headache and I got some work done in the yard when I have been falling down too much to do it. I blacked out a number of times and was rather POTSy but I was strong enough to get out and do some stuff.
So on my best day in a month, I had a pressure headache.
It’s a crazy illness we have.

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