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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: New and Would Love Advice

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › New and Would Love Advice › Reply To: New and Would Love Advice

June 17, 2014 at 6:00 pm #5029
Tamsin
Participant

I knew I was forgetting some things. I’ll probably still forget some things this time. 🙂

I’m attaching a picture of my right hand, palm down. I’ve had surgery on my right arm and hand- ulnar nerve, carpal tunnel and tendon over thumb.

The roof of my mouth is very narrow. I had eight teeth removed as a preteen due to overcrowding and then braces. The roof of my mouth is so narrow that food can get trapped up there and it is difficult to get out.

I have what appears to be atrophic scarring but it is confusing because I also have keyloids.

My arm span is about equal to my height. My big toes separate at the joint and can roll under my foot. I sit indian style out of comfort even in my work chair and didn’t think much of it but people ask me how I can do that.

I am often nauseated. At first I related it to my blurry vision but I know that sometimes its caused by severe head pain. Lately, though, I am vomiting more than usual.

I’ve had troubles with gastrointestinal issues even after my gallbladder was removed. It was just a dud and didn’t work, no stones.

I used to get bronchitis every winter that was attributed to post nasal drip. I had a deviated septum fixed but it is moving back to where it was before.

That’s all I can think of for now possibly related to a connective tissue disorder. I have a month or so off work and would like the possibility of getting a diagnosis in that time. I have spent so much money and time waiting on doctor appointments only to be disappointed that they didn’t know what was wrong with me, all the while I was getting worse. I want to make sure I go to someone who can diagnose. If so, I wouldn’t mind traveling a bit. I live in northern California. Any tips would be appreciated.

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