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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: POTS, HCM, and Driscoll Theory questions

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › POTS, HCM, and Driscoll Theory questions › Reply To: POTS, HCM, and Driscoll Theory questions

September 30, 2015 at 3:59 pm #5661
Dr. Diana
Keymaster

Welcome to the site, although I’m sorry to hear that you are suffering, and that your family is so greatly affected. I think I could write a book in response to your questions, but I did want to hit on a couple of things. I do NOT believe we need to have EDS (or joint hypermobility to have POTS — we had a patient in the office just last week with NO hypermobility, but a clear case of POTS). As you’ll read, many of us have problems with histamine-producing cells, including mast cells, but I do not believe that mast cells are the only (and perhaps not even the primary) cell causing problems. I’m so glad that you have the book, because we spend a lot of time explaining the role of undiagnosed intracranial pressure problems (of which you seem to have symptoms). Evaluating/treating this may offer you some immediate relief. Let us know? 😉

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