Hi PastorsWife. I’m relatively new myself and have experienced a gross lack of decent medical care since moving from my home. I wasn’t diagnosed until after a massive plethora of health problems began chronically attacking me, AFTER the move. I have much of what you do, though I won’t repeat. Again, I’m definitely NO EXPERT! What I can recommend is that you be a good steward of the strength/energy that God has given you and DO IT RIGHT THE FIRST TIME by going to the proper doctors, assuming you have access.
Dr. Francomano is in Maryland, Genetics
Dr. Cheney is in North Carolina, CFS
Dr. Grubb is in Ohio, Dysautonomia
Dr. Pocinki is in DC, Internal Medicine
Dr. Deitz is at Johns Hopkins but I think he deals mainly in Marfans and heard his name from someone affiliated. I haven’t personally investigated his credentials.
I believe Dr. Francomano would have the appropriate specialists, such as neurologist, etc etc etc to recommend for you.
I cannot speak from first hand experience because I am stuck ‘wasting’ healthwise myself due to not having proper medical care. I have researched myself blue in the face. It’s absolutely inhumane what I am going through. I can only suggest that you get yourself to the ‘top of the foodchain’ doctor and avoid all of the suffering that you may experience otherwise.