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Hi ‘Give my daughter the shot’ and All,
Thanks for the video link to the ‘CSF Ehler Danlos Colloquium’ (Dr Francomano), whilst I was there, I found another interesting video:-
Dr Jan Dommerholt talks about pain and muscle involvement, and what’s been discovered to be happening within the muscle, showing different ‘sats’ and ‘chemical read-outs’ within these areas of pain trigger points in muscle.
He also gives hope about a forthcoming change regarding all of our years spent trying to get diagnosed, it’s certainly interesting.