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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Fibrosis

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Fibrosis › Reply To: Fibrosis

September 10, 2013 at 5:35 pm #4317
Dr. Diana
Keymaster

Dear Dr. Diana, I am interested to know how are you sure you have fibrosis in your shoulder? What are your exact hints to fibrosis? I am 90% sure that in my body must be fibrosises – there cannot really be anything else going on I think – and I would like to be completely sure but I do not know how to get there. MRI might not show it, do you think? Blood values? Or rather symptoms and conclusions? Would love to know what your experience with fibrosis and diagnosis of it is. Hugs from Germany, Maja

Hi Maja, For me, it was an “educated guess”! I developed a “frozen shoulder”, which looked like a fibrotic event when I read about it in the literature. I also developed fibrosis elsewhere, so when I spoke to my doctor, he and I sort of agreed it may be fibrosis. The doctor offered to do a biopsy to confirm. I said, “Oh, nevermind.” 😉

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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