Dear Dr. Diana. Thank you for your answer!! 😉 I understand that.. –Where else did you develop fibrosis? I am quite sure that “my” kind of gastroparesis that I have will most likely be due to fibrosis of my stomach and also most likely of other muscles in my stomach. Same with my uterus and the polyp I got there. And the muscles in my mouth`s cheeks being fibrotic and causing scars and wounds and swellings inside my mouth etc. Fibrosis causes a lack of blood supply/tightended muscles, nerval over-activity I think in my body in these tissue areas that are most affected. My tissue tells me exactly by feeling really cold in the areas.. Also tend to get swellings from that inside on the linings and mucosas.. What do you think where does fibrosis most likely occur in EDS, in what kind of tissue? Muscles, even fat?, connective tissue itself?, fascia, tendon-like tissue…I would love and to know more about it. (And MRI prob won`t show these kind of fibrosis I guess..) Hugs to you – hope you will manage to get rid of the fibrosis in your shoulder!
Hi Maja, I’m still working on all of this, and much of it may depend upon our genes. Are you in the states? Did you complete a symptoms checklist (it’s under “Articles and Handouts”). We may be able to tell if you’ll respond to the medicine coming out, not only for gastroparesis, but for numerous other dysautonomia symptoms. Some of what you’re describing may SEEM like fibrosis, but *may* not be. That would be awesome, anyway! 🙂