Reply To: HEAD FILLS WITH BLOOD WHEN BEND OVER

[Give My Daughter the Shot!]

Heck, I walked in on the hospital administrator changing my records after I called and confronted her on the negligence of the lab staff making the executive decision to not send away a second specimen for species identification. You have no idea the trouble I went to in getting the second culture taken – after I had to force them to culture the first time. They found curvularia in a non-healing wound a few years ago. For those not familiar, it’s a black mould. If you look it up, you’ll find case studies of a couple of people living for a few days or a week while their brains were eaten away in the hospital. It’s treated with antifungals or at least that’s the least invasive. Once Rx for me, my growing wound did end up healing. Anyway…. You have no idea how weird it was walking in on her changing my records. I’d gotten a copy the Friday before and had the revised version in my hand now that it was Monday. The exchange was unbelievable, literally unbelievable! “Is this what you do when someone has a concern about your hospital”, I said. She said, “Are you saying that there’s something fishy” and I told her that, “I didn’t say that, you did”. Are you kidding! My gosh was my heart racing! Then I said, “I’ll just take these copies and put them with the ones that I picked up on Friday”, “Thank you”, and left. That fool didn’t even know what she was trying to accomplish (by the look of the changes she was making). I felt suspicious when she kept trying to debrief me, then telling me not to worry about it. Then who did you talk to, what did they say, when was that. I knew she was doing something shady so I rushed to the hospital to re-collect my records. She was very surprised to see me. So creepy!

ANYWAY, IT WOULD ALMOST BE NICE TO HAVE SOME SORT OF CLASS ACTION SUIT. NO, NOT BECAUSE WE ARE GREEDY MONEY LOVERS BUT TO RAISE AWARENESS! Seriously! SERIOUSLY! Everyone seems to have some pretty profound issues with being malpracticed, abused, treated negligently. I know it’s probably not appropriate talk and am not a big fan of attorneys. I’m in a position that I have to trailblaze some standards for my affected children. I’m so far behind the 8-ball of being treated like a human being. I don’t mind a doctor not knowing (at least they’re honest) or even not wanting to be bothered with something so complex (I sorta don’t blame them). The problem is that they use trickery and abuse tactics to mask their lack of knowledge. I saw somewhere that one of the worst things a doctor can do to someone with EDS (or similar) is to treat them like it’s all in their head – that does damage!

Hi Barbara, Obamacare will doom us to far worse care than we can imagine. It will take away any incentive for doctors to excel or perform at or above standards. Many US doctors are in private practice (I am now stuck in a clinic). Yes, it is true that better insurance generally affords better care. Is it fair, probably not. BUT without better insurance there would exist little or no ‘better care’. Here’s why. The private practice doctors are working hard to build their practices and if they don’t take proper and respectful care of patients, the patients have the option to go elsewhere. I used to manage dental and surgical offices. When a doctor starts their practice, they sign up with insurances as a participating provider and agree to the fee schedule imposed by that particular insurance company (whatever the gap between their fee for service IE: an office visit is $100 and the allowable amount that they’ve agreed to accept from that particular insurance company the office has to write off the difference between the two amounts). This is acceptable to the start up doctor because it is in exchange for patient referrals (which will build the practice and give the doctor a chance to market himself with new patients and prove himself competent and worthy of their trust) from the insurance company aka he becomes a participating provider with insurance company and the insured can choose him from their preferred provider list. Marketing. As the practice of a good and competent doctor grows, it will begin to drop the insurance companies that require the largest write offs and maintain contracted participation with the insurance companies that pay more or have a higher allowable fee schedule. Sometimes, they work their way up to where they are so in demand by their patients that they become fee for service and the patients pay in full upon visit and file their own paperwork for personal reimbursement by their insurance company. This would be a doctor like Dr. Paul Cheney, I assume. Until my condition financially broke me, I paid richly for specialized care for the outrageous things that were happening to me – in the name of ‘getting it right the first time’. Obamacare gives no incentive for doctors to excel. Add medmal reform and we are in so much trouble! The future of medical care is further at risk because nobody in their right mind would go to the trouble of medical school and contend with the limitations that the new healthcare regulations would impose onto them. Independent doctors offices will not be operational as too many staff will be required to be government compliant. Also, US doctors require so much schooling and are levied with so many standards that doctors who receive degree in other countries don’t have to meet. US bred doctors have to be able to earn $ at a certain level to justify the expense and investment of their schooling alone whereas this is not the case with migrant doctors. Basically, the new healthcare removes democracy from the healthcare system. I think our doctors already have it hard enough, by far. Our care will suffer greatly! I’m positive of it! Example: http://thechart.blogs.cnn.com/2012/05/28/what-is-elhers-danlos-syndrome/?iref=allsearch , the article written about EDS and the doc who wrote it. No incentive.