I can’t lean over either! I get nauseous like mad, pressure, sweaty and sick as heck – puts me out of commission and I have to immediately sit! I’m talking lean over to pick up a dropped tissue, barrette, or anything of virtual weightlessness. NOW, I can’t bend either because my joints hurt like heck. If I can’t lean or bend, how the heck am I supposed to clean my house??? Anyway, I’ve been incredibly upset about this and it was suggested (by someone knowledgeable) that it might be POTS – also might be tethered cord (by the same knowledgeable person).
I haven’t been diagnosed with POTS by a doctor but can’t stand much and am forever having to sit – that hurts too and my legs are a disaster area – so I have to stand briefly to unkink my tweaking legs – repeat – repeat – repeat.
Freezing limbs that have always freaked people out with major concern have now been met with burning heat and sweating through my clothing (ammonia like sweat). I think I fall into the range of being emaciated (and YES I do eat) so how on earth am I burning with sweat, randomly and for zero reason. I cannot tolerate heat anymore yet used to bask in it like a lizard or something. Used to LOVE heat as long as no humidity.
My heart races high and dives low for zero reason!!! Random!! My body ‘shuts down’ on me, AGAIN, randomly and for no reason at all. Stressful, for the first couple of years I would go around in circles as though madly chasing my tail in a confused and panicked effort to keep from hitting the floor. I feel as though someone or something is yanking the hair at the back of my neck backward and downward and my balance fails me. And, no, I don’t get the sensation in my hair – just my neck or head fails me and won’t stay upright properly.
I don’t know about POTS but DYSAUTONOMIA sure ‘hits the spot’ with what I’ve been experiencing for these last years. I haven’t been diagnosed with either. – Probably because I am deemed a liar or an exaggerator or annoying in some other way because I have too many problems or because one of the many doctors who keep replacing each other don’t believe in fibromyalgia. Or I am overdiagnosed and a hypochondriac (if I bring my notebook to prove that I’m not lying about the outlandish health things that I’ve endured). Basically, when the doctors leave and are replaced (high turnover), it’s a nightmare of losing the pittance of understanding that I had formerly broken my tail to acquire.
Just can’t win in efforts to secure a doctor. So much for 1st do no harm, huh. I sorta wish there was something that could legally be done to make the doctors be accountable to at least behave properly. It’s not a crime if they don’t understand but I think it is a crime if they abuse the patient by treating them like they are a ‘crazy’. That’s just not right!
Anyway, I don’t know if my head fills with blood when I bend over but I do know that it causes significant health problems for me to do so.