Megan, How disappointing! It sounds like he is a rare example of having
EDS making him LESS understaning, because he doesn’t understand how different
each case can be. I’m not a doctor, just a mother of child with similar symptoms,
however as I was reading your post EDS/POTS came to mind. I believe that
the primary condition of EDS causes a domino effect that leads to brain/spine
pressure from the unstable ocipital antioaxel ligament. That the brain pressure
leads to Dyaautonomia/POTS, that causes a myriad of symptoms, and that no two
people present exactly the same. Good Luck, never give up! My daughter is still
being told its psychological even though she has been dx with hypermobility, and POTS.
The doctors didn’t discover the POTS, I did from researching, then had to push for her to
be tested. It took asking 4 doctors, one tested her wrong, so said she didn’t have it.
Also its common for symptoms to get worse during puberty, and menstration.