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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Reaching out for help with my health issues

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Reaching out for help with my health issues › Reply To: Reaching out for help with my health issues

September 3, 2011 at 5:29 pm #1436
Dr. Diana
Keymaster

Jesslynn,
I’ve learned that I have to be my own advocate. I’ve been with me for 26 years, so I know my body the best, unfortunately doctors don’t always agree. How old is your daughter? I am working on researching and learning more about POTS. Dr. Diana’s information has been very very helpful, I just need to find a doctor! I’m planning to go across the country to a doctor, if that’s what it takes to get the correct diagnosis, etc. from a knowledgable doctor.

I am curious about birth control and menstration. My gynecologist just switched me to “low loestrin” instead of “loestrin.” She thinks it could help by keeping me on some form of hormone during the 4 days of my period. Maybe I should post a new topic to ask people about it.

Hi Megan, How are you doing, Sweetie? I’ve also made my appointment to make my cross-country trek to see my doctor (Dr. Francomano). It is so worth whatever it takes me to get there. No more “suboptimal” (ahem) docs for me! It really gets my mast cells going just thinking about it! I think a thread on stopping our periods would be a great one. I think I mentioned to you that I certainly stopped mine! I, too, went on a low dose pill that had just enough hormone to stop the periods and I stayed with it for over 2 years. Then I tried without it, just to test everything out. I did much better then. Most of us do. There is no medical reason for us to have a period, so I don’t think your doctor will have any problem keeping you on it as long as you want. Big hug,

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

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