NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS? › Reply To: RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS?
I just went to a cardiologist today bc of a bad POTS flare-up since the weekend. My heart rate is in the 140s on standing from resting of about 60 to 70. I can only stand up for a few seconds because of the pots and Syncope. I can walk-it is very difficult, but much easier than just standing there.
I just wanted to let you know Dr. Diana that I showed my cardiologist the neck vein pictures today. She said it was because I was skinny. I could not be more annoyed. She also said she could not do anything to help me with the severe POTS flare-up. Just water and salt – as if…
But the good news is with this flareup, I had cardiopulmonary testing on Monday, and now I finally have concrete documentation that I do have dysautonomia and pots. Everything was recorded on ECG standing, sitting standing and sitting again. I did not have pots the day of my tilt table test, but this proves it – they will be sending the electrophysiologist a copy of the results. I couldn’t be more happy because no one believed me about the pots. So as annoyed as I am with the medical system, hang in there everyone! Two years ago I was not diagnosed with anything…since then I have been officially diagnosed with EDS, VVS, increased intrinsic heart rate, and now I will have the diagnosis of pots and dysautonomia once the specialist receives the report.
OH, APRIL 24 – RHEUMATOLOGIST-HOPEFULLY TESTING FOR DERMATOMYOSITIS AND SYSTEMIC SCLEROSIS!!!!! WILL POST IT ONCE I HAVE THE RESULTS…