NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS? › Reply To: RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS?
I’m so sorry, MJ. With systemic symptoms, you need a doctor who is willing to work with your whole body (not just your skin). I’m going around and around with a few doctors like that now. It’s very frustrating. 🙁 I WILL tell you that I often don’t mention “EDS” or “hypermobility” for that very reason — they are scared/ uncertain. If 90% of us are never diagnosed, they likely seen a ton of us and never knew it… If the veins on your neck become distended, your doctor should know right away, though. Hang in! 😉