NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS? › Reply To: RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS?
MJ, I just wanted to suggest to you to take these sorts of pictures to your doctor. I encourage videos, too, for movement disorders that may come and go. Doctors often won’t ‘get it’, unless they see it (whatever ‘it’ may be)… Most of us don’t have mastocytosis, and I’ve never heard of it causing this presentations in the hands only… If it is mastocytosis, some lab work (especially a 24 hour urine) will usually pick it up. If it is mast cells getting activated, I would expect a different presentation. Sometimes we can tell what is going on by looking at concurrent symptoms. Does anything else happen when this happens? If I were you, I’d be tempted to ask your doctor (Dr. Google, in my case — ha) for differential diagnoses to polycythemia vera. I don’t think it is polycythemia vera, but perhaps one of the differential diagnoses? As far as having two conditions? Usually, we look for links — a reason that the two would be connected, right? I strongly believe that only after all of those have been exhausted do we start to consider two separate, unrelated conditions… When are you getting checked for dermatomyocitis, BTW? Gentle hugs…