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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Skin › RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS? › Reply To: RED HANDS + SORE ORGANS = SYSTEMIC MASTOCYTOSIS?

March 26, 2014 at 9:42 am #4947
Dr. Diana
Keymaster

MJ, If the veins in your neck are distending, that should alarm your doctors. It’s one thing to self-manage a condition when we know exactly what is going on — a different ball of wax if we’re just guessing. I’d strongly recommend that you keep pushing for a diagnosis and proper care. Please show them the distended veins on your neck. Usually a cardiologist will take interest in that! It is frustrating how many illnesses can exhibit through the skin, or other body part, but they are actually just manifestations of a systemic condition, and need to be treated as such. (I refused dermatological care because I knew it would cover up the systemic cause, for example). It’s just ‘easier’ for the doctors to treat what they see, rather than THINK ABOUT what it may indicate that they don’t see, but what is the root of the problem. Please keep advocating for yourself! 🙂

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