NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Does Dr. Diana still speak to people by phone? I am praying the possibility still exists. › Reply To: Does Dr. Diana still speak to people by phone? I am praying the possibility still exists.
Thank you for your suggestions. I will definitely do all of those things. One of the problems is the lack of raw data. Things are very different in Canada (at least where I am) with regards to getting testing/seeing specialists. After ten years my daughter’s GP did recognize that her lifetime hx of sx and aspects of how she looks could be VEDS. The specialist we waited six months to see literally laughed it off along with many other very debilitating sx (like very limited mobility due to hip pain that had begun 1 yr earlier). My GP did sign the paperwork I downloaded enabling us to pay for the genetic test ourselves from the Diagnostic and Collagen Lab in WA. Thankfully it was negative. I am going to have to think way outside the box regarding how to get more testing, see the right specialists as it is not going to happen where I am.
I appreciate your suggestions and will be pursuing them for certain.