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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Ketotifen Side Effect: Sleepiness

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › Ketotifen Side Effect: Sleepiness › Reply To: Ketotifen Side Effect: Sleepiness

June 14, 2016 at 8:28 pm #5962
Frost
Participant

Hi! I had one patient who had to start with “baby doses” of ketotifen to start because she noticed fatigue. The next time I spoke to her, she was up to 8mg/day (twice the recommended top dose). I’m not advocating such a large dose, but I think of her when considering folks who start ketotifen and suffer with some fatigue. Apparently, some of us get past it! 😉

Thanks for the reply!

On my day 3, I did notice significantly less fatigue, so it seems like I might be one of the lucky ones.

I have a related question: If the beneficial effects of Ketotifen are felt very quickly (within first day!), how likely is it that this is due to mast cells stabilization effect? Because, from what I’ve read, this usually takes some time. This would then imply that I am gaining benefits from the drug that is unrelated to the mast cell stabilization effect. Which would lead me to think it’s about H1 blocking. But then again, other H1 blockers are not nearly as effective.

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