hi, … i told him i found him from the dinet.org site for good dr. in your area… so i go to a cardiologist and he says what he said. i’ve been working on this since feb and i am not any farther than 20 yrs ago…
… i can not get anyone to give me diamox??
i have also been having alot of problems with my stomach-delayed gastric emptying, i get kidney stones but this was different so dr sent me for ct scan and they found spot an pancreas that can not be ruled out as neoplasm, fatty liver! i have never drank a drop of liquor in my whole life why would i have a fatty liver?? now more test i hate this. see this is what we go through. i have 4 kids that all show signs and i don’t even want to think about it. it sounds like i’m “debbie downer” today—sorry.
Hi Dab! You are not a Debbie-Downer! You express what most of us have been dealing with, which is incredibly frustrating and demeaning. ;( Now for some good news. Do you have symptoms of hydrocephalus? Did you already complete the Symptoms Checklist? (sorry if this is a repeat question!). I am in Texas, and I now have a specialist with me who can prescribe Diamox as needed, and we can do much of the follow-up long-distance if needed. Cool? You can reach me at Clinical_Trials@Prettyill.com. I’d love to have you come in — not only to help you, but you’d be helping so many others, too! We are performing some (top-secret!) high-tech testing to find your hydrocephalus (I can see how this is often missed by most doctors). We are self-funding this (Heaven help me), but will publish this so that all patients will have this peer-reviewed article to bring to their doctors. So if you can come, great (or if you know of anyone else who may need help, please let them know!). As far as your other symptoms, I am pulling together the team and for treatment to take care of these issues of organ dysfunction. This treatment is now patented, and the science speaks for itself. So, don’t go to far, OK? Oh, as an aside — sometimes it can be tough being a “girl” and a therapeutic optometrist working in the often (sadly) “good ‘ol boys” world. There are some tremendous doctors out there, but there are some who are not so tremendous, and are not excited to see me playing in their sand pile. 😉 I’ll look forward to hearing from you, and hopefully we can start to push things in the positive direction for you, OK? Gentle hugs… (