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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: "Free ME" poetry

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Spoonie Art Contest! › "Free ME" poetry › Reply To: "Free ME" poetry

September 27, 2013 at 10:40 am #4431
allyb
Participant

As the monotony of the incarceration got to me I felt like a faceless number to the medical profession, they wanted a timeline of my illness yet nothing I wrote seemed to resonate. When I spoke I missed words; nothing flowed and I came over as a half-wit in the little time you get….if I wrote it…it just wasn’t read. So I needed a novel way to pull them up short …so when Doctors asked for my history I just used to hand them this………..

How many hours in 24?

How many hours in 24?
I’m rushing, I m dashing, I wish there were more!
I have work; I have leisure and pleasures galore.
So much to squeeze into this life I adore.

Birthday celebrations are a family affair,
A nightmare to organize; to get everyone there.
How many hours in 24?
So little time, so much in store.

All of a sudden life grinds to a halt!
My whole body damaged by a viral assault.
How many hours in 24?
My life has been taken, I’m sick to the core.

In my room I’m entombed, the air it hangs stale,
Immobile, imprisoned; stuck here in jail.
How many hours in 24?
Minutes become hours; it’s not like before.

My curtains are closed when I can’t bare the light,
Nothing to look at, no view in sight.
How many hours in 24?
When your view is the ceiling, the walls and the floor.

Others are busy with lives of their own,
Hour upon hour, I spend all alone.
How many hours in 24?
As life carries on but outside my door.

Infinite nights, haunted with pain,
A daunting reality visits my brain.
How many hours in 24?
When you cannot shut out the perpetual snore.

Each day is a battle, a fight to stay well,
Not enough soldiers, it’s as scary as hell.
How many hours in 24?
I fear time’s running out and I’m losing the war…..

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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