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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Undiagnosed disease: Autonomic Nervous System?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Undiagnosed disease: Autonomic Nervous System? › Reply To: Undiagnosed disease: Autonomic Nervous System?

August 2, 2015 at 5:39 am #5582
Frost
Participant

Hello,

Have you been diagnosed with Ehler-Danlos syndrome?

Did you have any hypertensive episodes PRIOR to starting the Ritalin treatment?

Can you describe in a greater detail the “pressure sensations” in the head – is it more on the back of the head, or more in the face? Do you experience any facial flushing?

You have mentioned that there is a significant variation in your blood pressure occasionally. Have you made sure you measure your blood pressure multiple times during the a day, and do it consistently?

Finally, while I do not have the same experiences, I have noticed that if I consume a stimulant (say, Modafinil), and experience any pressures in the head/chest, L-THEANINE seems to cancel it. As it is easy to buy, maybe give it a go – it might help reduce the symptoms, while you are searching for a better option. (For example: http://www.amazon.com/Doctors-Best-Suntheanine-L-Theanine-Vegetable/dp/B001OXTGVG .)

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