NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Scared and Looking for Some Direction › Reply To: Scared and Looking for Some Direction
I can relate to many of your symptoms but my main observation, from your history, is that your symptoms were worsened after you gave birth. There’s one thing I remember about being a new mum (albeit 27 years ago!) and that is, that you spend an awful lot of time looking down i.e. with your head in ‘flexion’, feeding, cuddling, chatting to baby etc. Another activity that worsens your symptoms is reading, again you’ll be looking down.
I bring this to your attention because my own symptoms were worsened when my head was in this position and, although I didn’t recognise it as anaphalaxis, my throat would swell, if I looked down at a magazine and turned left, right, left, etc., as you do when glancing through the pages.
One occasion when this happened I was actually in the hospital waiting room, waiting for my ENT appointment. The episode lasted approx 30-40 mins and had unfortunately subsided by the time I saw the consultant. However, when she checked my throat, she said it was red but blamed it on ‘Gastric reflux (even though I hadn’t had a reflux attack!!) and told me to continue with the GR medicine (crazy!).
Also, when I woke in the night with the pains from HELL, sort of paralysed, able to only move one tiny muscle at a time (which worsened the pain!) until I’d got use of my body back – I noticed that again my chin was right down on my chest (head fully in flexion).
You need to bear this in mind and try and adapt the things that you do, so that your head is straight forwards as much as possible, observe and adjust, I’m pretty certain it will help.
Head & Neck Injury (June 2002); Mild Concussion; Post Concussion Syndrome; Postural Orthostatic Tachycardia Syndrome (POTS); Peripheral Vestibular Dysfunction; Mild Radiculopathy & Small Fibre Neuropathy (right leg & foot resp.); Partially Empty Sella (Oct 2002) Fully Blown Empty Sella (Oct 2004); Whiplash Associated Disorder (WAD); Cranio-cervical Instability (CCI) with Posterior Gliding (PG) & Cranial Settling (CS); Retroflexed Odontoid; Stretched/Elongated Brainstem; Vitamin D deficiency; Ehlers Danlos (EDS) type 111; and now Osteoarthritis!