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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Scared and Looking for Some Direction

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Scared and Looking for Some Direction › Reply To: Scared and Looking for Some Direction

June 3, 2012 at 8:08 pm #2332
ScaredSingleMamainMaryland
Participant

Thank you Barbara! I do notice my head being down is a contributor (sp). However, I have symptoms many other times when my head/neck is in normal position. I try to adjust when I can (I.e. I now sit for showers and read less and use my phone instead of a big computer, etc.). One scary thing of late is my symptoms used to subside with sleep (so long as I was not in an attack or having symptoms when I went to sleep) but now the tachycardia, neuropathy type issues, dizziness, and headaches are happening in my sleep and waking me. I am so frustrated that my Neuro. Says it is POTS and wants to look no further and do nothing more than prescribe seizure/migraine meds. Anyway, I very much appreciate your reply and suggestions. Thank you and God bless!

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