NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Hyperadrenergic Dysautonomia – POTS as one of many symptoms › Reply To: Hyperadrenergic Dysautonomia – POTS as one of many symptoms
Great thoughts here! Many of us assumed we had “dysautonomia” because we had the signs and symptoms. The doctors at Mayo confirmed my hyperadrenergic POTS diagnosis, but did not say that I had autonomic dysfunction (mainly because I passed the QSART and thermoregulatory testing). Although gastroparesis was my very first symptom, for example, they just decided to sort of ignore that. It wasn’t until years later that I realized the experts were using the term ‘dysautonomia’ or ‘autonomic dysfunction’ to describe only the (less-sick) neuropathic form of POTS. They would have called mine ‘non-neuropathic’ or just plain ‘hyperadrenergic POTS’. I think this has confused everyone, our doctors, certainly the patients, and most everyone’s diagnosis is now up for grabs! We’ll look forward to your thoughts about blood sugar. I’m pushing ahead toward revealing an overlooked cause (with an effective treatment) for the non-neuropathic form (although it may help with the neuropathic form, too). To report its effectiveness with the neuropathic form, we need to all get on the same page as far as our “true” diagnosis goes. This is not easy, as you have seen. Our diagnoses change between doctors, facilities, and even COUNTRIES. Crazy, huh? Gentle hugs to you and your daughters…