• Skip to main content
  • Skip to secondary menu
  • Skip to primary sidebar
  • Skip to footer

PrettyIll

Header Right

Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

  • Home
  • The Driscoll Theory®
  • Videos
  • Meet Dr. Diana
  • Forum
  • Store

Reply To: Hyperadrenergic Dysautonomia – POTS as one of many symptoms

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › The Latest Research › Hyperadrenergic Dysautonomia – POTS as one of many symptoms › Reply To: Hyperadrenergic Dysautonomia – POTS as one of many symptoms

February 23, 2014 at 12:07 pm #4902
Dr. Diana
Keymaster

Great thoughts here! Many of us assumed we had “dysautonomia” because we had the signs and symptoms. The doctors at Mayo confirmed my hyperadrenergic POTS diagnosis, but did not say that I had autonomic dysfunction (mainly because I passed the QSART and thermoregulatory testing). Although gastroparesis was my very first symptom, for example, they just decided to sort of ignore that. It wasn’t until years later that I realized the experts were using the term ‘dysautonomia’ or ‘autonomic dysfunction’ to describe only the (less-sick) neuropathic form of POTS. They would have called mine ‘non-neuropathic’ or just plain ‘hyperadrenergic POTS’. I think this has confused everyone, our doctors, certainly the patients, and most everyone’s diagnosis is now up for grabs! We’ll look forward to your thoughts about blood sugar. I’m pushing ahead toward revealing an overlooked cause (with an effective treatment) for the non-neuropathic form (although it may help with the neuropathic form, too). To report its effectiveness with the neuropathic form, we need to all get on the same page as far as our “true” diagnosis goes. This is not easy, as you have seen. Our diagnoses change between doctors, facilities, and even COUNTRIES. Crazy, huh? Gentle hugs to you and your daughters…

Footer

PrettyIll.com

This website was created to inform, educate and brainstorm with fellow patients and doctors. The content should not be used as a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and their physicians. The creator of this site will not be liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this website.

Twitter: @prettyill

What others say

“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

Listings by topic

  • Chronic Fatigue
  • Consult
  • Contact
  • Coping
  • Ehlers-Danlos
  • Fibromyalgia
  • Hydrocephalus
  • Mast Cell Disease
  • Multiple Sclerosis
  • Orthopedic Issues
  • Pain Control
  • POTS
  • Speaking Engagements
  • Store
  • Uncategorized
  • Vascular abnormalities

This work may not be reproduced, copied or used in anyway without the express permission of the author -- that's me © Dr. Diana Driscoll 2020