Hmmm, Mayo refused to take me. I don’t really have a Doctor other than my GP who has been wonderful. However, everything he knows about Dysautonomia, he learned from me. And I’ve learned from your site and dinet.org. I’ll see what I can do to get get more testing done.
OMG. How is it even possible for Mayo to NOT see you? I am stumped. Do you have autonomic dysfunction? Trouble breathing? Difficulty breathing got me in the door. I *think* you can just show up without an appointment, if you’d like. One thing Mayo does well for us, is autonomic testing (I haven’t heard many good things about their care for EDS/POTS patients, though… (PLEASE let us know if your experience is different everyone!) Oh, can you add your doctor to our “good doctors” list? Thanks!