NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?
You say your voice is higher in your collar, I’m just a little concerned that your collar could be too tight fitting on your throat, not good. I had to have mine cut away a little from that area in order to be comfortable.
Whilst we’re on the subject of collars, for anyone that’s recently bought one, a Philadelphia collar is best worn with a collar lining, at all times, in order to avoid overheating and discomfort. They have to be cleaned daily too, to stop further skin soreness and irritation. I think they’re called ‘cool max’ liners.
I’d have to say this is likely the biggest complaint of EDS/POTS based on the number of posts & views! This & fatigue are a close tie for me.
I’ve struggled with this for years. I began complaining to my doctor about this & daily headaches in 2000. I was told they were tension headaches and sent to a chiro. It didn’t help. Fast forward through a sports-related neck strain and 3 whiplashes (my car is certainly a target for bad drivers), and 2 falls (over a dog gate & down a flight of stairs) and it’s still here. I’ve tried PT, more chiro care, OTC meds, ergonomic workstation adjustments at work, acupuncture, steroid injections, & massage. NOTHING touches it. Except for my c-collar! Best $10 I’ve ever spent- haha.
Results? I have a little more energy today. Could it be the coffee with an extra shot of espresso? Maybe :). I think my vision is a TINY bit less blurry today. Well, it was when I woke up anyway. Hmmm… the neck pain is back and so is the blurry vision. Related? Heck yes!
Also, I think my voice is higher pitched when I’m in the collar. Anyone else? Why would that be?