NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?
Hi
You say your voice is higher in your collar, I’m just a little concerned that your collar could be too tight fitting on your throat, not good. I had to have mine cut away a little from that area in order to be comfortable.
Whilst we’re on the subject of collars, for anyone that’s recently bought one, a Philadelphia collar is best worn with a collar lining, at all times, in order to avoid overheating and discomfort. They have to be cleaned daily too, to stop further skin soreness and irritation. I think they’re called ‘cool max’ liners.
Regards
Barbara
(UK)
I’d have to say this is likely the biggest complaint of EDS/POTS based on the number of posts & views! This & fatigue are a close tie for me.
I’ve struggled with this for years. I began complaining to my doctor about this & daily headaches in 2000. I was told they were tension headaches and sent to a chiro. It didn’t help. Fast forward through a sports-related neck strain and 3 whiplashes (my car is certainly a target for bad drivers), and 2 falls (over a dog gate & down a flight of stairs) and it’s still here. I’ve tried PT, more chiro care, OTC meds, ergonomic workstation adjustments at work, acupuncture, steroid injections, & massage. NOTHING touches it. Except for my c-collar! Best $10 I’ve ever spent- haha.
Results? I have a little more energy today. Could it be the coffee with an extra shot of espresso? Maybe :). I think my vision is a TINY bit less blurry today. Well, it was when I woke up anyway. Hmmm… the neck pain is back and so is the blurry vision. Related? Heck yes!
Also, I think my voice is higher pitched when I’m in the collar. Anyone else? Why would that be?