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PrettyIll

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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Medication

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › Coping › Medication › Reply To: Medication

June 13, 2012 at 12:08 am #2410
ourfullhouse
Participant

Zonisamide and Gabapentin made my hyperadrenergic POTS worse! Also, Florineff made it worse and gave me migraines like 20 days out of 30. Awful! What has helped is Diamox. Migraines are almost completely gone, dizziness and fainting are gone and palpatations and tachycardia are less. Still working on getting those gone too. I started on Welbutrin last week as it helps a lot with hyper POTS. So far I at least am starting to feel better and have more energy, but sleep has gotten worse (which is a side effect during the first few weeks).

If I didn’t live on the west coast I would sign up to get an appt with Dr. Francomano even if it took a year or more. You are so blessed to live where there are great doctors not too far away!

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“Dr. Diana will always hold a very special place in my heart for her selfless devotion to helping everyone, not just the Ehlers-Danlos community. I hate to think what my life would be without her insight and guidance.”

-- Chris Gross

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