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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

June 21, 2012 at 10:57 am #2466
EDS99
Participant

I hv occipital headaches which have been present for only the last year and a half. It comes and goes but is much less frequent once I started on mast cell treatment. (I was ‘lucky’ to qualify for an appy with a GI mastcell specialist … Only had to wait 3 weeks). I usually don’t have it radiating more than a couple inches below the head.

I wanted to add that for many years I have needed to avoid added msg… particularly if there was any alcohol with it OR some sort of dirivative. It was easy to figure out because the symptoms would be immediate. It would start with a sizzling in the occipital area and tehn a headache in the same place Once in a while it progressed to`being unable to breath unconsciously…like “auto-pilot” was turned off. I would manually need to move my ribs so air would go in and out of my lungs. the lattr happened with Egg Foo Yong (which has a touch of alcohol in it (eve should be bued off). I thought I was safe eating steamed buns but I realized that since it is made with yeast, a fermentation process can occur.

I mention this because it is located exactly where I get the occipital headacheds these days. I know this thread is older… just thought I’d put it out there in case it had any “valie” Dr. Diana.

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