NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Did you see the video "Is it POTS or Dysautonomia"? Curious about your thoughts. › Reply To: Did you see the video "Is it POTS or Dysautonomia"? Curious about your thoughts.
Thank you! I was asking about that because I believe the definition of dysautonomia suits me to a ‘T’ but am not 100% certain that I meet the specific criteria of POTS every time I stand or that I achieve the specific relief every time I sit back down. I don’t have a doctor helping me with this as of yet and am not comfortable using my heart rate watch to figure out, myself, whether or not I am a perfect fit for POTS. As for dysautonomia, my heart is randomly all over the place without explanation, my body is seriously unable to regulate temperature, it also seems to randomly ‘shut down’ on me in various ways. All sorts of out of sync things have been occurring to me with regards to the basic functions of my body (basic functions that just about everyone takes for granted) for quite awhile now. Yes, I cannot stay upright (as in POTS) but I am not certain that my heart rate is specific in its pattern. Yes, it raises by 30 bpm but it also seems to rise and fall with less predictability than what I understand of POTS. I can feel the blood draining from various parts of my body. I’m lightheaded and nauseous, dizzy, poor balance and forced to sit. I think my heart rate may begin to drop before I’m able to sit (but am not 100% right now). My heart rate also seems to randomly drop sharply while I’m in a seated position, it can rise also for no reason and I sweat when this happens. Very weird, I know. No I am not ‘thinking about something bad’. I can tell a distinct diff between my body doing this on its own and when I am struggling with anxiety. What I experience seems to be a pretty severely dysregulated autonomic nervous system but I hadn’t been completely positive about POTS and felt that my experience might be more random and less predictable. I do have all of the other listed issues that fall under dysautonomia. Still, I wasn’t completely certain about POTS. Is the standard definition of POTS a guarantee with dysautonomia? Can you have one without the other?