I would definitely say I have dysautonomia, not just POTS. I have been diagnosed with POTS by the Tilt Table Test, but do not check my rate at home so can’t say that it does or doesn’t happen every time I stand up. My question is: What type of specialist is best to manage dysautonomia?
The question of the year! If you find someone, please let us know! Personally, I had to figure it out myself, after dealing with a gazillion doctors who just “didn’t get it”. I can’t blame them. I, too, would have never figured this out if I hadn’t lived through it (and watched my kids get triggered, too). Between you, me and the wall, Mayo was great in diagnosing “POTS”, but not with EDS, or underlying causes. That’s why “The Driscoll Theory” was born, my friend, after years of research, trial and error and comparing notes with many others. I’ve moved beyond it, now, and am bringing in other doctors to help publish much of this. I wanted to get The Driscoll Theory out to everyone in advance of the clinical trials and publications, because there is so much needless suffering occurring. Now it is time to move to scientific journals for credibility and to take it to the next level. Sound good? 🙂 Diana