NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Did you see the video "Is it POTS or Dysautonomia"? Curious about your thoughts. › Reply To: Did you see the video "Is it POTS or Dysautonomia"? Curious about your thoughts.
Absolutely, I have a diagnosis of POTS via tilt testing but it’s so much more
than a jump in heart rate. My symptoms vary hugely from day to day,hour
to hour and involve HR,BP,headache,brain pressure,dizziness,poor balance
nausea,FATIGUE,reflux,”UTIs”,digestive stuff,brain fog,feelings of impending
doom etc so yes there’s more out of whack than heart rate. On a rare good
day my HR can be pretty normal and I would probably not be diagnosed with POTS.
“Dysautonomia” describes the wider range of systems affected and the fluctuation
of symptoms better than POTS.Thank You for the wonderful work you are doing, looking
forward to answers and feeling better!
Hi DizzyMe, YES! EXACTLY! And unfortunately, our dominoes can continue to fall, one after the other. I’m making a symptom checklist for everyone — for your use and for research/publication. I humbly believe I know what’s going on here, and my “potential symptoms” list is now at around 150! Most doctors would never believe we could have so many, seemingly unrelated symptoms. Amazingly, they ARE all related. It’s just not obvious to the casual observer, or the uninitiated. We’ll be bringing the truth to light. Hang in, my friends. 🙂 Diana