NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › POTS › Did you see the video "Is it POTS or Dysautonomia"? Curious about your thoughts. › Reply To: Did you see the video "Is it POTS or Dysautonomia"? Curious about your thoughts.
Thank you for your response Dr. Diana,
Austin has not been seen for dysautonomia or mast cell disorder. Our docs would not even consider such things. Any family that presents with multiple issues that are odd, get the “look”. We have had the “look” many times. They would be very happy to put us all on depression/anxiety drugs and have done with it. Or so they think. Even though my son went through all the “proper protocol” for that and took every drug they asked him to take, with absolutely no effect (negative symptoms or positive). That is why I am waiting for the EDS conference and see if we can find a recommendation for a doc who could see him for this. I don’t have the strength to start from the bottom and work my way up anymore. I am 53, and I have been doing this all my life. So we will wait for August.
I just finished reading your book, and Austin has just begun it. I learned much, but didn’t understand it all. So I am still working on watching all your videos. I have been wondering if I can just start Austin on the two antihistamines and see what the response is. Although he almost never responds to prescription drugs. We have had a number of P450’s done for him, and there seems to be evidence of this. But I think there is more to it.
And thank you for reminding me of the magnesium! I do have to work at getting him to take the baths, and the “Calm” product we use as well.
Anyways, off to do more research.