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Dr. Diana, both a doctor (therapeutic optometrist), and a recovered POTS and ME/CFS patient, offers help and hope for POTS, Dysautonomia, Ehlers-Danlos syndrome, Chronic Fatigue, Chronic Lyme, vascular abnormalities, Fibromyalgia, and Multiple Sclerosis. Dr. Diana is now working full time at POTS Care.

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Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

NEW STUDY! Parasym Plus™ for Multiple Sclerosis › Forums › PrettyIll.com Discussion › EDS/MS/Chiari › Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders? › Reply To: Who has neck pain with pain at the bottom back of their heads that radiates down to their shoulders?

July 9, 2012 at 8:08 pm #2559
Dr. Diana
Keymaster

Very interesting! I do get this type of pain quite often. For me it seems worse as the day wears on. The pain is horrible. I put muscle rub on my neck and shoulders and when I have been able to get a massage it does help while I am being massaged but as soon as it is over the pain is back full force.

Hello, my friend, Did you check into the symptoms of hydrocephalus? I betcha’ you’ve got them! Have you tried Diamox or mast cell meds yet? Please do! Interestingly, many of us are in the “autism spectrum”, and researchers are looking very closely at head circumference sizes in autistic children (going back to when they were babies). Many doctors prescribe Diamox for autistic kids. Interesting, don’t you think? Hon, I just know that taking off that extra pressure was truly a life-saver for me.. Let us know? 🙂 Big hug, Diana

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